Fact-finding meeting on privacy and data control

27 September 2013

The Council’s Working Party on biological and health data held its second fact-finding meeting on 12 September 2013. The meeting was focused on privacy and data control issues in research and clinical practice, and the Working Party heard from the following experts:

Should children be involved in clinical research?

Press Release

7 August 2013

Would you let your child take part in clinical research? How much say should children have in these decisions? Should they be encouraged? These and other such questions are at the heart of a new inquiry from the Nuffield Council on Bioethics, which has today opened a consultation on the ethical issues arising from children taking part in clinical research.

Scottish strategy on organ donation includes suggestion of funeral costs of donor families

29 July 2013

The Council’s suggestion of paying the funeral costs of organ donors has been included in the Scottish Government’s strategy for organ donation. 

Council holds fact-finding meeting on ‘big data’

23 July 2013

The Council’s Working Party on biological and health data held its first fact-finding meeting on Friday 19 July, marking a shift from the initial scoping phase of the project into the evidence gathering period. During the meeting, members of the Working Party heard a range of views from the following guests working in research and data processing:

  • Francine Bennett of Mastodon C, a big data consulting company;

Council holds stakeholder meeting on children and clinical research

18 July 2013

The Council’s new Working Party on children and clinical research held a stakeholder meeting on Wednesday 17 July. Guests included young people and parents with a strong interest in or personal experience of participating in clinical research, as well as health care professionals and representatives from interest groups.

EU Parliament vote on biofuels

11 July 2013

The Environment, Public Health and Food Safety Committee of the European Parliament has today voted to reduce the amount of transport fuel derived from food-based renewable sources in the EU. MEPs voted in favour of draft legislative measures which propose to:

  • limit to 5.5% the use of food-based biofuels counting towards the 10% target for renewable energy use in transport, set in the Renewable Energy Directive

Welsh Government approves opt-out system for organ donation

3 July 2013

The National Assembly for Wales has voted to approve a soft opt-out system for consent to deceased organ and tissue donation for Wales starting from 2015. The stated aim of the Bill is to increase the number of organs and tissues available for transplant.

Government to draft regulations to allow treatments using mitochondrial replacement techniques

28 June 2013

The Department of Health today announced plans to draft regulations that pave the way for new treatments to prevent the transmission of inherited mitochondrial DNA disorders. The Chief Medical Officer, Dame Sally Davies, said that draft regulations will be published for consultation later this year, and a Parliamentary debate will follow in 2014. 

New brain treatments: proceed with care

Press Release

24 June 2013

New technologies that can help people with serious disorders affecting the brain are needed, but must be used in ways that put the care and safety of patients first, says a report by the Nuffield Council on Bioethics.

Professor Albert Weale awarded CBE

24 June 2013

The former Chair of the Nuffield Council on Bioethics, Professor Albert Weale, has been awarded a CBE in the Queen’s Birthday Honours for services to political science.

All at the Council would like to send their warmest congratulations to Professor Weale, who chaired the Council from 2008 – 2012.

Albert Weale