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Pharmacogenetics: Ethical Issues

Terms of Reference

1 To explore what pharmacogenetics offers now and is likely to offer in the near future;

In particular to examine the effect of pharmacogenetics on:

    a) the design of medicines, the promotion of efficacy and safety in the administration of medicines to individuals;
    b) the conduct of clinical trials in the context of pharmaceutical research and development;
    c) clinical practice.

2 To consider ethical issues specifically raised by pharmacogenetics;

In particular to examine the following areas:

    a) consent, privacy and confidentiality;
    b) the management of information about the likelihood of response to treatment;
    c) the implications of differentiating individuals into groups based on the likelihodd of response to treatment.

3 To consider the implications for the provision of healthcare.

Last Updated Thu, 10 June 2004