How to respond

The Council is inviting written submissions of evidence to inform its consideration of ethical issues arising from emerging techniques to prevent the transmission of inherited mitochondrial disorders.

Download the Call for Evidence document (PDF 190KB)

Browse the Call for Evidence online:

  1. About this project

  2. Background: What are mitochondria?

  3. Background: Ethical questions arising

  4. Background: The role of genetic testing

  5. Background: Pronucelar transfer (PNT)

  6. Background: Maternal spindle transfer (MST)

How to respond

The closing date for written evidence is 5pm, Friday 24 February 2012.

This is an open Call for Evidence, seeking ethical views on any aspect of these emerging techniques and the issues associated with them. Accordingly, we have not provided structured questions for response.

We would prefer it if you could send your response to us electronically. Responses can be sent via email to Johanna White: jwhite@nuffieldbioethics.org with ‘Techniques to prevent inherited mitochondrial disorders: ethical issues’ in the subject line. 

Please ensure that you also include a completed response form.

If you would prefer to respond by post, please send your submission to:

Laura Riley
Nuffield Council on Bioethics
28 Bedford Square
London
WC1B 3JS

For information about obtaining a large print version of this call for evidence, please contact us using the below details.
Telephone: +44 (0)20 7681 9619
Fax: +44 (0)20 7323 6203

Guidance on submitting written evidence

It will assist the Working Group if you could:

  • limit your response to one single Word-formatted document, of no more than 2,000 words in length, preferably submitted by email;

  • include a short summary in bullet point form at the beginning of the document;

  • have numbered paragraphs throughout; and

  • ensure your submission is accompanied by a completed response form.

In addition:

  • The Working Group’s final report may make public the evidence received during the project in full, or in selected quotation. Please state in the response form whether you wish your submission to be made public.

  • If you wish to include private or confidential information in your submission, please discuss this with the project leader, Laura Riley (lriley@nuffieldbioethics.org) before submitting it.

  • Material that has previously been published should not form the basis of your submission.

  • If you reference your own previously published work in your submission and feel that the Working Group would benefit from reading it in the published form, please send us electronic or hard copies of the referenced items together with your submission.

  • Although your submission remains your own property, the Nuffield Council on Bioethics consider it a courtesy that you do not publish your submitted response until after the publication of the final report. This is scheduled for spring/summer 2012. If this expectation raises any concerns, please contact the project leader, Laura Riley (lriley@nuffieldbioethics.org) in advance of your submission.

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