The Council has agreed to establish a new work theme to examine the ethical issues raised by the involvement of children and young people in clinical research. The central focus of this project will be to consider whether the current systems for regulating clinical research strike the right balance between promoting the understanding of childhood diseases (and the associated availability of evidence-based treatments for children) and ensuring the proper protection of child participants.read more »
On 22 February 2012 the Council held an exploratory workshop which bought together Council Members, staff and invited experts to discuss the ethical issues raised by genomics, health records, database linkage and privacy.
This topic was identified at the 2011 Forward Look meeting and the workshop was held to help members decide whether the issue merits further examination by the Council. The workshop opened with presentations on the following subjects:read more »
On 9 December 2011 the Council held an exploratory workshop on the ethical issues raised by children taking part in clinical trials. This topic was identified at the 2010 Forward Look meeting and the workshop was held to help members decide whether the issue merits further examination by the Council.
The workshop brought together Council members, staff and invited experts to consider the following key questions:read more »
At present, some women with mutated mitochondria who would like to use their own eggs to have a baby can be offered ways to minimise, but not prevent, their risk of passing on passing mitochondrial disorders to their child. This may be done by using embryo testing techniques to gather more information about the risk of passing on health problems. They may be offered preimplantation genetic diagnosis (PGD) and/or prenatal diagnosis (PND).
Preimplantation genetic diagnosis (PGD)read more »
Baroness Onora O’Neill gave the Council's Annual Lecture at the Royal Society of Arts on Thursday 19th May 2011.
Download a transcript of the lecture.
Watch a video of the lecture.read more »
The discussion paper Stem cell therapy: the ethical issues was published in April 2000. Since then, many countries have announced new legislation concerning the use of stem cells and therapeutic cloning.
Under the 1990 Human Fertilisation and Embryology (HFE) Act research on embryos is permissible "to increase knowledge about the causes of congenital disease".read more »
We do not consider that concerns about inappropriate incentives resulting from a potential benefit deriving from the establishment of an EG (embryonic germ) cell line are so great that the donation of fetal tissue for such purposes should be prohibited.read more »