Genomics healthcare and research

Current Project

Current project

We are looking for case studies that illustrate how people in the UK are tackling the ethical issues raised by genomics healthcare and research initiatives.

Our findings will help the Government develop a UK model for how to apply ethical standards to genomics initiatives.

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Project Background

In its Genome UK strategy, the Government committed to establishing a gold standard UK model for how to apply strong and consistent ethical and regulatory standards, while recognising the need for more discussion on how to achieve this in a meaningful way.

We are helping to facilitate those discussions, and we will start by collecting and analysing case studies of existing and past work from the UK’s rich ecosystem of world-leading expertise on the ethical issues raised by genomics.

We need you!

We are looking for case studies that illustrate how people in the UK are tackling the ethical issues raised by genomics healthcare and research initiatives. We want to hear about the approaches you have taken so we can look for common themes and examples of best practice.

Our findings will help the Government develop a UK model for how to apply ethical standards to genomics initiatives. If you think you can help, please read the case study criteria and instructions for submitting. We look forward to hearing from you!

This work is funded and led by the Nuffield Council on Bioethics.

Project lead

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Catherine Joynson

Assistant Director

Catherine is part of the senior management team. She is responsible for leading a range of Council projects including the active response programme and its horizon scanning work.

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