The Nuffield Council on Bioethics (NCOB) is set to establish a network to foster knowledge exchange and co-develop ethical resources and guidance for those working in genomics across the UK.
GenomicsPersonalised healthcareBiological and health data
The Nuffield Council on Bioethics (NCOB), working in partnership with the Ada Lovelace Institute has published a report warning of the risks to population health and people’s privacy if the NHS was to roll out AI-powered genomic health prediction (AIGHP) technology too soon.
Through mapping existing ethical guidance available to those working in UK-based genomic research and healthcare, we have identified gaps in guidance that need addressing in a coordinated way.
GenomicsPersonalised healthcareBiological and health data
Together with the Ada Lovelace Institute we have published a report highlighting the pressing ethical, legal and social questions surrounding the convergence of AI and genomics.
Frances Flinter – Council Member and Emeritus Professor of Clinical Genetics at Guy’s & St Thomas NHS Foundation Trust – talks us through some important issues to consider in relation to the introduction of whole genome sequencing of newborn babies.
Reproduction, parenthood & familiesChild and infant healthGenomicsScreening
We are delighted to announce that Professor David Archard, Chair of the Nuffield Council on Bioethics, has been appointed to the National Genomics Board.