Genetic screening: ethical issues


Published 01/12/1993

Genetic Screening ethical issues

Genetic screening for diseases such as cystic fibrosis and sickle cell anaemia raises important ethical, legal and practical issues for the individual involved, their families and society generally.


Positions correct at December 1993

Professor Dame June Lloyd DBE (Chairman) (deceased 2006)

Formerly Nuffield Professor of Child Health in the University of London

Dr Elizabeth Anionwu

Lecturer in Community Genetic Counselling at the Institute of Child Health, London

Professor Keith Ewing

Professor of Public Law, King’s College, London

Mrs Lesley Greene

Director of Support Services, Research Trust for Metabolic Diseases in Children

Professor Peter Harper

Professor of Medical Genetics at the University of Wales College of Medicine, Cardiff

Dr Anne McLaren DBE FRS

Principal Research Associate at the Wellcome/CRC Institute of Cancer and Developmental Biology, Cambridge

Mrs Caroline Miles

Ian Ramsey Fellow, St Cross College, Oxford, and formerly Chairman of Oxfordshire Health Authority

Dr Bernadette Modell

Consultant in Perinatal Medicine, University College and Middlesex Medical School, London

2006 supplement

(Positions held correct at 2006)

Professor Elizabeth Anionwu

Member of the Working Party on Genetic Screening (1993)

Professor of Nursing, Head of Mary Seacole Centre for Nursing Practice, Thames Valley University

Professor Martin Bobrow

Head of Department of Medical Genetics, Cambridge Institute for Medical Research, University of Cambridge

Professor Neva Haites

Professor in Medical Genetics and Associate Dean (Clinical), University of Aberdeen

Professor Peter Harper

Member of Nuffield Council on Bioethics and Member of the Working Party on Genetic Screening (1993) University Research Professor in Human Genetics, Cardiff University

David Shapiro

Former Executive Secretary of Nuffield Council on Bioethics