News Royal Colleges consensus statement on prenatal screening supports Nuffield Council NIPT recommendations Today, the Royal College of Obstetricians and Gynaecologists, Royal College of Midwives, and Society and College of Radiographers have published a consensus statement on supporting women and their partners through prenatal screening ahead of the roll-out of non-invasive prenatal testing (NIPT) in the NHS in England. 02 Dec 2020
Blog Non-invasive prenatal testing is starting to get the attention it deserves by Catherine Joynson Two years after we published our report on NIPT, and seven years after NIPT became available in the UK, we were frustrated by a lack of action by regulators, professional bodies and private companies in response to our recommendations for improving practice. What a difference six months can make. 05 Sep 2019 0
Blog Our concerns about non-invasive prenatal testing (NIPT) in the private healthcare sector by Catherine Joynson If you or your partner have been pregnant in the last five years, or you have seen news stories abo... 08 Feb 2019 412
News Nuffield Council on Bioethics to pitch ‘commercial genomics’ inquiry to MPs The Nuffield Council on Bioethics has been invited to pitch an inquiry on commercial genomics to the... 21 Jan 2019
News NIPT - review of activities since publication In March 2017, the Nuffield Council on Bioethics published a report, Non-invasive prenatal testing: ... 16 Nov 2018
Press Release Nuffield Council on Bioethics response to introduction of non-invasive prenatal screening in Wales From Monday, non-invasive prenatal testing (NIPT) for Down's, Edwards', and Patau's syndromes ... 27 Apr 2018
Policy Briefing Read policy briefing Downloads Download the briefing note 27 Mar 18 Whole genome sequencing of babies This briefing note explores the ethical issues raised by whole genome sequencing of babies.
Press Release Coding at birth: Nuffield Council on Bioethics publishes briefing note on whole genome sequencing of babies The Nuffield Council on Bioethics has today published a briefing note that examines the ethical issu... 27 Mar 2018
News Nuffield Council on Bioethics welcomes Church of England’s call to value people with Down’s syndrome We welcome the Church of England's motion on valuing people with Down's Syndrome in light of the... 09 Feb 2018
News Nuffield Council on Bioethics raises concerns about the ‘reflex’ prenatal screening test for Down’s syndrome Results of a study exploring the performance of the 'reflex' prenatal screening test have been p... 10 Nov 2017
Report Read report Downloads Download the report Download the guide to the report Download the key recommendations Download the easy read guide to the report Listen to the easy read guide Guidance for manufacturers and healthcare providers 01 Mar 17 Non-invasive prenatal testing: ethical issues This report considers how NIPT could change the way we view pregnancy, disability and difference, and what the wider consequences of its increasing use might be.
Press Release New pregnancy testing technique needs limits says ethics body A new report on non-invasive prenatal testing (NIPT) by the Nuffield Council on Bioethics expresse... 01 Mar 2017
News Hearing people with Down's syndrome’s views on prenatal screening The Council is partnering with national learning disability charity Mencap to explore prenatal genet... 01 Dec 2016
Press Release Supplement to 1993 Report on Genetic Screening The Nuffield Council on Bioethics has published a Supplement to its report Genetic Screening: ethica... 12 Aug 2006
Report Read report Downloads Genetic screening: a supplement to the 1993 report 12 Aug 06 Genetic screening: a supplement to the 1993 report This supplement to our 1993 report on genetic screening summarises scientific, technological and policy-related developments that have taken place over the past 13 years in the UK.
Report Read report Downloads Download the report Download the guide to the report Download the summary and conclusions 01 Oct 02 Genetics and human behaviour: the ethical context Research is exploring how genes and the environment influence behavioural traits. This report addresses concerns over how this information could be used to try to predict, change or select such traits.
Report Read report Downloads Download the report 01 Sep 98 Mental disorders and genetics: the ethical context This report considers the ethical concerns raised by research into the genetics of mental disorders.
Report Read report Downloads Download the report Download the supplement to the report (2006) 01 Dec 93 Genetic screening: ethical issues